Visit by representatives of the Committee for Social Affairs, Health and Integration

In Germany, ME/CFS is currently estimated to affect about 300,000 people, although the numbers may be 5-10 times higher due to misdiagnosis. There is a lack of clear diagnostic criteria, such as biomarkers. Although many researchers worldwide have been trying for years to figure out the causes and mechanisms of the disease, there is still no clear understanding of how the disease develops and how it can be treated.

For an exchange on ME / CFS (Chronic Fatigue Syndrome), the three members of the state parliament: Petra Krebs, Thomas Poreski and Dr. Michael Preusch visited the NMI. Dr. Nicole Schneiderhan-Marra and colleagues shared the findings and focal points in this field of research to date and outlined which innovative possibilities are available for further research approaches on site. Important answers can be provided by well-founded research methods on the mechanisms in the development of the disease and its further course. In an initial discussion, it was necessary to clarify what contribution politics can make together with the researchers in a working group. Both are interested in laying the foundation for the development of specific diagnostics and therapies that will lead to an increase in the quality of life of those suffering from the disease.